Saturday, November 9, 2013

Heterotopic Ossification Update

   Jarrad went to see Dr. Dahners on Thursday.  We were nervous for 2 reasons.  1.  Because we had heard/ read reviews that he was conceited and had horrible bedside manner.  and 2.  That he would say no.  
   Our fears were relieved.
   Jarrad found the doctor to be confident and efficient with his words and time. He said he was very matter of fact but listened and answered questions.  When asked about his mortality rate, the doctor said he has lost count of how many surgeries of this type he has preformed and has yet to lose a patient.  It is considered a high risk surgery.  But there was something about his manner that Jarrad found reassuring.
   Good.
Anteroposterior radiograph of the left knee in a p
Not Jarrad's bones but gives you an idea of HO
   Jarrad is scheduled for surgery on the 20th.  Yes, that is a week and a half away.  Of course, his blood work needs to come back with the go ahead.  The blood tested to see if the growth has stopped or slowed to a significant level.  On Thursday, he goes back for a CAT scan to "map" where blood vessels and nerves are.  Damage to these areas would cause a recurrence of growth.
   Right now, Jarrad is "locked" into place.  His hips have 85 to 90 degrees of range when sitting and when lying prone, 170 (roughly).  Meaning that he can't lie flat.  He has lost mobility because I now have to put his shoes and socks on and get his pants started.  He can't close his legs or open them wider.  The bone is a foreign agent so it causes swelling and causes pain.  Right now, he is on some heavy duty anti inflammatory meds.  This gives relief but not a lot.   His left hip has HO on both sides, probably due to the broken femur, and then tibia and fibia.  His right hip has it only in front.  This means that he might have to have 3 surgeries.  The doctor did say that if things are looking good (I am assuming little to no blood loss), that it might just be two.  Right now, his first surgery will be on his right hip. 
    So pray that 1.  It will go so well that they can do just 2 surgeries.  2.  That the hospital stay is brief.  3.  That he gets range of motion back and that there is no new growth.  4.  That this results in less pain.
    If successful, it will improve Jarrad's quality of life.  He will be able to bend his hips which will make transferring easier and will (hopefully) be in less pain which means less meds! 

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